Monday, February 20, 2012

Together, we can raise AVM awareness!!

AVMs are very rare, 1% of the population has an AVM somewhere in their body. 
By the age of 20, only about .1% has NOT bled-- that means that 99.9% of people with AVMs will hemorrhage by the age of 20! Every year, the odds of bleeding go up 3-4%.
Since my diagnosis I have discovered a fantastic website, www.TAAFonline.org . TAAF stands for The Aneurysm and AVM Foundation.
This organization is researching AVMs and aneurysms in order to find early detection, before they hemorrhage. This foundation also organizes an annual awareness walk.
I am currently selling these bracelets all proceeds will be donated to TAAF. (on one side they say: "RAISE AVM AWARENESS", the other side: "WWW.TAAFONLINE.ORG"-- band is black; font is teal.)
I am accepting any donations for TAAF, but for a donation of 5 dollars, or more, you will receive a bracelet.
Please contact me if you are interested in making a donation.
Thank you all for your support!

1 comment:

  1. Tough lady indeed. And you know we will be there on Saturday to cheer you on! Excellent explanation, by the way, of the procedures, the options and all related risks. All you wanted to know about AVM....

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